For myself

My job last week mostly consisted of carrying some bags, lifting a wheelchair in and out of a car and helping set up at speaking engagements. It was different than what my days usually look like and challenged a different part of my brain. I worked a lot on the computer, used physical energy infrequently, was sitting more and not moving around and even though I was doing things, sometimes a part of me felt bored. This was all internal of course and had nothing to do with good company or what I may have been attending to at that moment.

I like to keep moving and that’s why I love the job I have now. The kids and some young adults keep me going. I always joke that I don’t need a gym, because I’m moving all the time. That’s not true, but it feels like it.

I sometimes find it a challenge, to not be physically doing things and moving around or getting that adrenaline kick because I have so many things to do. It forces me to use a different part of my brain. Focusing, analyzing, direct communication and breathing slower. I can’t do C, before completing A. They are separate.

I do different things to train my brain. I play the hard Sudoku, read the King James version of the Bible, practice word puzzles.  Mostly, I have joined a swim class, try to jog once a day for 15 mins and have tried stretching each day.  See, I do things for myself!

 

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Always moving

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I know I can

How much are you willing to push, to get the result you want? If we are treated un-fairly, we complain, if there is an in-justice, we try to make it right or are out raged, if we are failing in school, our parents say we need to work harder. Why when you only take care of someone’s physical needs and they have a disability, does no one say, you’re not doing enough?

The effort I put in to support my clients is wholesome. It’s a yearning in my heart to treat them like any other child that I meet. A lot of people say “what do you do with them” I never understand what to answer. I usually say “what do I do with who?” They explain and ask about things like care, and that’s it. When I explain what I do and ignore the care question (because sometimes it’s private) people are floored. The reason I don’t understand their amazement, is because I wonder what people do with their own kids? They don’t only provide care? And what happens when their kids don’t need help with dressing etc, you must do other things? Well, that’s what I do, other things. I mean, who doesn’t want to go out and experience the world?! Or stay home and experience the world as the case may be.

Even my clients who are non-verbal and don’t have a specific “yes/no” communication system, I know they appreciate effort. You can just tell what they like and what they don’t. How many times have I heard “he’ll use the device for the OT, but not for me” or “he’ll walk for the dad and not for her” or “they don’t like going out with me.”  You know what I say to that, TRY HARDER. Yes, sometimes the person won’t “perform”  or doesn’t want to do things. I would ask why?

Supporting the children and teens can be hard, not physical burn out hard, even though that happens too. I mean brain power hard. I am using every fibre of my being to listen, respect and do right by them. Their dreams are my command. If I’ve supported a client in the classroom or at home with school work, I need to believe they can do what I’ve set in front of them to the core of my being. If I don’t believe they can do it and set them up for success, they often won’t. And some of them don’t care. They’re going to continue to go to school, encounter the same attempts, be happy in life and give love unconditionally to those around them. There is something about rising to the occasion. If the occasion hasn’t shown up, should I still rise?

People talk over my clients heads about what they can and can’t do. It makes me angry. We are so concerned with facts, science and check lists, that we can’t shut our bodies up enough to truly watch and listen to those we are hired to support.

I challenge myself and others as support staff to stop and shut ourselves up. We can talk and do a lot of things without assistance. Let’s give those that need us to understand them the floor. For any wish they may have.  With everything in our beings.

This young man thought he could never be near the water.  I knew he could.  Trust me, I got beat up and sometimes had to run (for fun) to get him there.  But once there…amazing!

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